Saturday 12 April 2014

"A Visionary Piece of Legislation": Reviewing the Mental Capacity Act

The House of Lords published their review of the 2005 Mental Capacity Act (MCA) a few weeks ago.  You’d be forgiven for not noticing – it slipped from the headlines almost immediately.  Much like the Act itself, the select committee findings barely penetrated the public consciousness.  The reporting about them was sloppy and sensationalist in turn, lumping the MCA together with the unwieldy and unworkable Deprivation of Liberty Safeguards, which were shoehorned into the Act in 2009.  The generic “mental health laws” that the news articles referred to were, in fact, not generic at all, but very specific.  As the Lords report stated, the Mental Capacity Act was a “visionary piece of legislation”, designed to empower and protect those who lack capacity, and which has been misused due to misunderstanding and a simple lack of awareness.

Craiglockhart Hospital, where new treatments
for shell-shocked soldiers were explored
The history of mental health legislation in the UK dates back to the Act Regulating Madhouses of 1774, which first formalised the treatment of the mentally ill in society, who were at the time locked in madhouses in appalling conditions.  As legislation stuttered through the nineteenth century ‘lunatics’ became ‘patients’, the madhouses were replaced by asylums and laws were introduced to regulate conditions in them.  These developments continued into the twentieth century, inching towards a more progressive view of those suffering from mental illness.  One of the major breakthroughs, in law at least, was the 1930 Mental Treatment Act, which permitted voluntary admissions to mental hospitals.  Advances in psychiatric treatment, accelerated by innovative treatment of shell-shocked prisoners after WWI, allowed for more patients to be treated and discharged back into the community.  But whilst legislation and treatment was changing, society’s opinion of those with ‘mental deficiencies’ was slower to catch up.

The integration of mental hospitals into the National Health Service in 1948 was critical in instigating a move away from institutionalisation in the 1950s; a move which was finally enshrined in the Mental Health Act of 1959.  The 1959 Act sought to bring treatment of mental health in line with treatment of physical illnesses.  It also removed “promiscuity or other immoral behaviour” as grounds for detention and encouraged the development of care in the community for those suffering from mental disorders.  The 1959 Mental Health Act was “heralded as a great piece of liberalising legislation”, but sadly came to be overshadowed by concerns about “failures of services and abuses of professional power.”

These concerns, fuelled also by changing public perceptions of mental health, prompted the 1983 Mental Health Act.  The 1983 Act put in place stronger legal controls around medical treatments of mental illness and detention of the mentally ill, and introduced a Mental Health Act Commission to oversee the implementation of the Act in practice (now subsumed into the Care Quality Commission).  Notwithstanding some extra sections inserted in 2007, the 1983 Mental Health Act remains in place today and provides the statutory framework for providing care to formal mental health patients.

But there was a gap.  There were no provisions in the Mental Health Act for those patients who had been informally admitted.  The 2005 Mental Capacity Act plugged this hole.  The MCA provided a statutory framework for safeguarding vulnerable people who lack the capacity to make certain decisions about their life.

The ground-breaking core principle of the MCA is that capacity is to be assumed unless proven otherwise.  The framework of the Act should be used to support individuals to make their own decisions wherever possible.  It recognises the right of the individual to make unwise decisions.  I’ve made plenty of unwise decisions in my time (see, for example, the scars on my right palm from taking a metal pan out of the oven with my bare hands), but no one is questioning my capacity to make the important decisions in my life, such as where I live or what I do with my money, just as we shouldn’t immediately conclude that someone with dementia or a learning disability is unable to make these decisions about their lives.  The MCA makes it clear that capacity is decision-specific.

The ‘best interests’ process set out in the Act ensures that a person who is found to lack capacity around a certain decision has their wishes and feelings taken into account, by involving those who care about and for them.  The Act “signified a step change in the legal rights afforded to those who may lack capacity, with the potential to transform the lives of many.”

In theory, the MCA is a wonderful piece of legislation.  The majority of professionals who gave evidence to the House of Lords select committee spoke highly of it.  However, the Act has not been implemented in the way it was intended to be.  It is not entrenched into the practice of health and social care professionals, whose prevailing cultures of “paternalism (in health) and risk-aversion (in social care) have prevented the Act from becoming widely known or embedded.” Further still, beyond these sectors the Act and its empowering ethos are scarcely recognised at all.  It has far-reaching implications and the Lords report argues that its uses and application should be more widely publicised to both service users and their families, as well as amongst other professional sectors, such as banking and policing.

The central recommendation of the Lords report is the creation of an independent body to oversee the implementation of the Mental Capacity Act.  This body should also have responsibility for publicising the Act and raising awareness of it outside of health and social care.  The report also recommends scrapping the Deprivation of Liberty Safeguards (DOLS) completely and starting again, which in the light of the recent Supreme Court judgement, which has made them an even more bureaucratic box-ticking exercise that does little to truly protect the people it claims to, is urgently required.  However, DOLS aside, the Mental Capacity Act is an incredibly powerful and positive piece of legislation. Spread the word - the more people who know about it and put it into practice, the better life will be for the people it is there to help.

See: the Mental Capacity Act (2005): http://www.legislation.gov.uk/ukpga/2005/9/contents